top of page
Join us as we navigate the incredible journey of my daughter, Suzy, and the lessons learned along the way through her experience with Joubert syndrome. From the challenges we faced to the triumphs we celebrated, Suzy's story is one of resilience, love, and hope. We invite you to share in our experiences, explore the insights gained, and discover how this journey has shaped our lives. Together, let's raise awareness and support for those affected by Joubert syndrome.

Our Journey
If You Knew Suzy is a heartfelt account that sheds light on life with Joubert syndrome.
This book is a testament to love, strength, and understanding.

bottom of page